This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $209,533 | $146,734 | $56,400 | $731,361 | $717,129 |
| FY2023 | 990 | $238,706 | $360,563 | $309,764 | $683,726 | $669,536 |
| FY2022 | 990 | $225,817 | $157,051 | $89,475 | $797,225 | $783,077 |
| FY2021 | 990 | $221,009 | $180,724 | $115,000 | $744,554 | $730,406 |
| FY2020 | 990 | $227,054 | $166,927 | $104,867 | $705,171 | $691,023 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 33% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| UNIVERSITY OF IL AT CHICAGOCHICAGO, IL | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $71,000 | 2023 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jonathan Jacoby | EXECUTIVE DIRECTOR | 10.00 | $0 |
| Jack Bendheim | DIRECTOR | 2.00 | $0 |
| Susan Jacoby Stern | DIRECTOR | 2.00 | $0 |
| Debra Pell | DIRECTOR |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. |
| $63,500 |
| 2023 |
| HOPE FOR MARIANSANTA MARIA, CA | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $60,000 | 2021 |
| REGENTS OF THE UNIVERSITY OF MICHIGANANN ARBOR, MI | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $50,000 | 2023 |
| UI CENTER FOR ADVANCEMENTIOWA CITY, IA | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $50,000 | 2023 |
| UNIVERSITY OF PENNSYLVANIAPHILADELPHIA, PA | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $45,849 | 2020 |
| CHAMELEON BIOSCIENCESBERKELEY, CA | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $42,302 | 2023 |
| ALBERT EINSTEIN COLLEGE OF MEDICINEBRONX, NY | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $40,018 | 2020 |
| REGENTS OF THE UNIVERSITY OF MICHIGANANN ARBOR, MI | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $40,000 | 2021 |
| UNIVERSITY OF IL AT CHICAGOCHICAGO, IL | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $27,500 | 2022 |
| UI CENTER FOR ADVANCEMENTIOWA CITY, IA | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $25,000 | 2022 |
| MICHIGAN MEDICINE OFFICE OF DEVELPMENTANN ARBOR, MI | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $25,000 | 2022 |
| TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIAPHILADELPHIA, PA | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $25,000 | 2022 |
| UNIVERSITY OF IL AT CHICAGOCHICAGO, IL | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $21,000 | 2024 |
| ARA PARSEGHIAN MED RES FUND NOTRE DAMENOTRE DAME, IN | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $18,000 | 2020 |
| DANA'S ANGELS RESEARCH TRUSTGREENWICH, CT | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $17,500 | 2023 |
| UNIVERSITY OF OXFORD | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $12,962 | 2023 |
| REGENTS OF THE UNIVERSITY OF MICHIGANANN ARBOR, MI | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $12,500 | 2024 |
| THE STATE UNIVERSITY OF IOWA FOUNDATIONIOWA CITY, IA | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $12,500 | 2024 |
| BLOOMSBURY GENETIC THERAPIES LIMITED ADRIEN LEMOINE | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $7,000 | 2024 |
| NATIONAL NIEMANN-PICK DISEASE FOUNDATIONFORT ATKINSON, WI | TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE. | $1,000 | 2020 |
| 2.00 |
| $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202402369349301175
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202342519349301609
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202201869349301405
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202141879349301344
Form 990 · FY2019 · period ending Dec 31, 2019
Filing id 202001419349300415
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201941359349311844
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201831799349301063
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201732059349301023
Form 990 · FY2015 · period ending Dec 31, 2015
Filing id 201701959349300445
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.