This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $988,446 | $820,079 | $371,359 | $909,630 | $763,426 |
| FY2023 | 990 | $922,627 | $912,811 | $247,151 | $668,536 | $567,353 |
| FY2022 | 990 | $555,149 | $548,054 | $139,301 | $603,477 | $523,404 |
| FY2021 | 990 | $739,794 | $832,762 | $268,883 | $595,041 | $566,331 |
| FY2020 | 990 | $519,113 | $543,317 | $160,251 | $678,108 | $625,469 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 67% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| VARIOUS | RESEARCH | $246,359 | 2024 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Carrie Howell | EXECUTIVE DI | 40.00 | $113,440 |
| Sophia Cacciatore | BOARD MEMBER | 5.00 | $0 |
| Lisa Feehery | PRESIDENT/CO | 10.00 | $0 |
| James Fink | BOARD MEMBER |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| RESEARCH |
| $184,611 |
| 2023 |
| VARIOUS | Not available | $166,883 | 2021 |
| VARIOUS | RESEARCH | $83,191 | 2022 |
| FOUNDATION FOR ANGELMAN SYNDROMEAURORA, IL | NEWBORN SCREENING | $77,000 | 2021 |
| ANGELMAN SYNDROME FOUNDATION INCAurora, IL | RESEARCH | $50,000 | 2020 |
| CHILDREN'S HOSPITAL LOS ANGELESLOS ANGELES, CA | NYS NDD PROGRAM | $50,000 | 2024 |
| UNC CHAPEL HILLCHAPEL HILL, NC | DREAM FUND GRANT | $50,000 | 2024 |
| FOUNDATION FOR ANGELMAN SYNDROMEAURORA, IL | NEWBORN SCREENING | $38,500 | 2022 |
| FOUNDATION FOR ANGELMAN SYNDROMEAURORA, IL | NEWBORN SCREENING | $38,500 | 2023 |
| WEILL MEDICAL COLLEGE OF CORNELLNEW YORK, NY | DREAM FUND GRANT | $25,000 | 2024 |
| The University of North Carolina at Chapel HillATLANTA, GA | RESEARCH | $25,000 | 2020 |
| UNC CHAPEL HILLCHAPEL HILL, NC | RESEARCH | $25,000 | 2021 |
| CURE EPILEPSYCHICAGO, IL | RESEARCH | $24,040 | 2023 |
| REGENTS OF THE UNIV OF CALIFORNIA | RESEARCH | $12,610 | 2022 |
| 5.00 |
| $0 |
| Joe Ivan | SECRETARY/TR | 5.00 | $0 |
| Anne Karch | PRESIDENT/CO | 10.00 | $0 |
| Elina Marchenko | BOARD MEMBER | 5.00 | $0 |
| Tony Marmo | FORMER TREAS | 5.00 | $0 |
| Mike Porath | BOARD MEMBER | 5.00 | $0 |
| Sam Quigley | BOARD MEMBER | 5.00 | $0 |
| Sarah Thacker | BOARD MEMBER | 5.00 | $0 |
| Jacqueline Vanderhoof | BOARD MEMBER | 5.00 | $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202403179349305905
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202343179349307714
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202203189349312850
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202113159349302031
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201932529349300508
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201812559349301026
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.