This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $1,194,735 | $1,003,948 | $324,631 | $2,817,931 | $2,801,393 |
| FY2023 | 990 | $1,016,405 | $612,534 | $111,151 | $2,669,586 | $2,638,419 |
| FY2022 | 990 | $990,673 | $499,455 | $100,268 | $2,277,966 | $2,235,475 |
| FY2021 | 990 | $993,526 | $478,020 | $163,500 | $1,762,638 | $1,744,722 |
| FY2020 | 990 | $738,552 | $438,250 | $167,289 | $1,307,819 | $1,229,216 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 67% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| University of MichiganAnn Arbor, MI | Alport Syn ancillary natural history study | $170,733 | 2024 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Lisa Bonebrake | EXECUTIVE DIRECTOR | 65.00 | $105,000 |
| Andrew Kronenberg | BOARD CHAIR | 10.00 | $0 |
| Ryan Linder | SECRETARY | 2.50 | $0 |
| Daniel Kilpatrick | TREASURER |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| School of Medicine Alport Study in mice |
| $132,835 |
| 2024 |
| Washington University in St LouisSt Louis, MO | Research genetic therapy A.S. | $132,000 | 2021 |
| University of MichiganAnn Arbor, MI | Natural History Study in Alport Syndrome | $97,151 | 2023 |
| University of MichiganAnn Arbor, MI | Natural History Study in Alport Syndrome | $91,624 | 2022 |
| Alport Syndrome Treatment & Outcomes RegistryMinneapolis, MN | ASTOR Patient Registry | $35,289 | 2020 |
| Massachusetts Eye & Ear InstituteBoston, MA | Research cause of hearing loss A.S. | $26,000 | 2021 |
| Others under threshold | Alport Syndrome research | $11,063 | 2024 |
| Others under reporting threshold | Not available | $644 | 2022 |
| 5.00 |
| $0 |
| Sharon Lagas | CO-FOUNDER, DIRECTOR PAST CHAIR | 5.00 | $0 |
| Amy Rhodes | DIRECTOR | 5.00 | $0 |
| December West | DIRECTOR | 1.00 | $0 |
| Marty Dunleavy | DIRECTOR | 1.00 | $0 |
| Phillip Kumnick | DIRECTOR | 1.00 | $0 |
| Stephen Malach | DIRECTOR | 1.00 | $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202443169349306299
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202332589349300103
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202201929349300100
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202122179349301427
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201943119349301814
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201812559349300001
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201742309349300934
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.