This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $1,958,729 | $2,328,629 | $70,000 | $1,790,426 | $1,316,881 |
| FY2023 | 990 | $2,407,696 | $1,990,356 | $65,000 | $2,033,233 | $1,660,247 |
| FY2022 | 990 | $1,698,174 | $2,007,489 | $70,000 | $1,503,657 | $1,193,561 |
| FY2021 | 990 | $2,125,476 | $1,648,260 | $125,000 | $1,775,522 | $1,513,520 |
| FY2020 | 990 | $1,671,115 | $1,755,654 | $112,500 | $1,619,228 | $1,106,765 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| VANDERBILT UNIVERSITY MEDICAL CENTERNASHVILLE, TN | FELLOWSHIP: THE ACHA ACTELION FELLOWSHIP AWARD FOSTERS PROGRAM START UP AND DEVELOPMENT OF TRAINING PROGRAMS THAT CLEARLY DEMONSTRATE A SUSTAINABLE COMMITMENT TO ACHD CARE AND FELLOWSHIP TRAINING. | $80,000 | 2020 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| James Ruppel Md Ms | CHAIR | 2.00 | $0 |
| Stephen Back | VICE CHAIR | 2.00 | $0 |
| William Browne | TREASURER | 2.00 | $0 |
| William Causey | SECRETARY |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| TRUSTEES OF COLUMBIA UNIVERSITYNEW YORK, NY |
| RESEARCH AWARD |
| $32,500 |
| 2021 |
| BOSTON CHILDREN'S HOSPITALBOSTON, MA | RESEARCH AWARD | $32,500 | 2021 |
| DUKE UNIVERSITYCHARLOTTE, NC | RESEARCH: PEER COACHING ADAPTIVE SELF-MANAGEMENT INTERVENTIONS FOR YOUNG ADULTS WITH CHD | $32,500 | 2020 |
| ICAHN SCHOOL OF MEDICINE AT MOUNT SINAINEW YORK, NY | INVESTIGATING THE GENES INVOLVED IN PULMONARY ARTERIAL HYPERTENSION IN CHD CONTINUATION OF PRIOR YEAR GRANT WORK | $25,000 | 2024 |
| CHILDRENS NATIONAL MEDICAL CENTERWASHINGTON, DC | EXPLORING MIND BODY RESILIENCE AND COPING/COGNITIVE EXERCISES (EMBRACE) A PSYCHOEDUCATIONAL INTERVENTION FOR ACHD | $25,000 | 2022 |
| DARTMOUTH HITCHCOCK MEDICAL CENTERLEBANON, NH | GRANT FUNDING FOR PROJECT TITLED: PSYCHOLOGICAL TRAUMA AND POST-TRAUMATIC STRESS DISORDER IN ADULTS WITH CONGENITAL HEART DISEASE: "WHAT IS THE SCOPE OF THE PROBLEM?" | $25,000 | 2024 |
| ICAHN SCHOOL OF MEDICINE AT MOUNT SINAINEW YORK, NY | INVESTIGATING THE GENES INVOLVED IN PULMONARY ARTERIAL HYPERTENSION IN CONGENITAL HEART DISEASE | $25,000 | 2023 |
| STANFORD UNIVERSITYLOS ANGELES, CA | LEVERAGING WEARABLE TECHNOLOGIES FOR ARRHYTHMIA DETECTION IN ADULTS WITH CONGENITAL HEART DISEASE - THE ACHD APPLE WATCH STUDY | $20,000 | 2023 |
| BAYLOR COLLEGE OF MEDICINE TEXAS CHILDREN'S HOSPITALHOUSTON, TX | IN SILICO EVALUATION OF A DUAL-IMPELLER SINGLE-DRIVE FONTAN CIRCULATION ASSIST DEVICE | $20,000 | 2023 |
| UNIVERSITY OF CALIFORNIA SAN FRANCISCOSAN FRANCISCO, CA | UNDERSTANDING PERIPARTUM ARRHYTHMIA IN WOMEN WITH CONGENITAL HEART DISEASE. | $20,000 | 2024 |
| STANFORD UNIVERSITYLOS ANGELES, CA | VALIDATING A PATIENT-REPORTED OUTCOME TOOLS IN ADHD PATIENTS STUDY AND RCT OF THE EFFECTS OF CARDIAC REHABILITATION VS TADAFIL STUDY (SUBCONTRACTED TO VANDERBILT) | $15,000 | 2022 |
| STANFORD UNIVERSITYLOS ANGELES, CA | REHAB FONTAIN FAILURE- RCT OF THE EFFECTS OF CARDIAC REHABILITATION VERSUS TADALAFIL AMOUNT PATIENTS WITH FONTAN FAILURE | $15,000 | 2022 |
| TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIAPHILADELPHIA, PA | RESEARCH AWARD | $15,000 | 2021 |
| THE MEDICAL COLLEGE OF WISCONSIN-CHILDREN'S WISCONSIN HERMA HEART INSTITUTEMILWAUKEE, WI | IMPACT OF A HOME-BASED HEALTH LIFESTYLE ON BODY COMP STUDY | $15,000 | 2022 |
| CHILDREN'S HOSPITAL MEDICAL CENTERCINCINNATI, OH | RESEARCH AWARD | $15,000 | 2021 |
| UNIVERSITY OF IOWAIOWA CITY, IA | RESEARCH AWARD | $15,000 | 2021 |
| UC REGENTSSAN FRANCISCO, CA | RESEARCH AWARD | $15,000 | 2021 |
| 2.00 |
| $0 |
| Binta Baudy | BOARD MEMBER | 2.00 | $0 |
| Chad Chase | BOARD MEMBER | 2.00 | $0 |
| Jennifer Cortes | BOARD MEMBER | 2.00 | $0 |
| Jonathan Cramer Md | BOARD MEMBER | 2.00 | $0 |
| Nicole Jung | BOARD MEMBER | 2.00 | $0 |
| Yuli Kim Md | BOARD MEMBER | 2.00 | $0 |
| Richard Krasuski Md | BOARD MEMBER | 2.00 | $0 |
| Matt Martinho | BOARD MEMBER | 2.00 | $0 |
| Claudia Norman | BOARD MEMBER | 2.00 | $0 |
| Meredith Rahn-Oakes | BOARD MEMBER | 2.00 | $0 |
| Kristi Ryan | BOARD MEMBER | 2.00 | $0 |
| Tim Singletary | BOARD MEMBER | 2.00 | $0 |
| Anne Stapleton-Reilly | BOARD MEMBER | 2.00 | $0 |
| Erin Walsh-Beguin | BOARD MEMBER | 2.00 | $0 |
| Cynthia Felix Jeffers | BOARD MEMBER UNTIL 12/9/24 | 2.00 | $0 |
| Joanne Nichols | BOARD MEMBER UNTIL 8/30/2024 | 2.00 | $0 |
| Mary Jane Eazer | SECRETARY UNTIL 9/30/24 | 2.00 | $0 |
| Mark Roeder | PRESIDENT AND CEO | 50.00 | $171,963 |
| Jennifer Hockenhull | DIRECTOR OF FINANCE | 40.00 | $127,961 |
| Danielle Hile | SR. DIRECTOR OF MEDICAL AFFAIRS | 40.00 | $116,166 |
| Kerry Wevodau | DIRECTOR OF WALK FOR 1 IN 100 | 40.00 | $104,868 |
| Janine Guglielmino | DIR. OF PATIENT RESOURCES & ADVOCACY | 40.00 | $100,960 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202441709349301404
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202341989349301129
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202222319349300132
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202112099349300146
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201931349349309178
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201821219349300302
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201701289349302080
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.