This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $1,111,068 | $1,215,256 | $110,825 | $2,744,118 | $2,602,400 |
| FY2023 | 990 | $1,221,343 | $1,241,572 | $263,200 | $2,754,023 | $2,650,284 |
| FY2022 | 990 | $1,485,666 | $1,013,571 | $340,000 | $2,828,501 | $2,664,367 |
| FY2021 | 990 | $1,133,539 | $728,273 | $175,000 | $2,460,755 | $2,197,723 |
| FY2020 | 990 | $1,252,600 | $724,872 | $205,177 | $2,147,198 | $1,721,321 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 29% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| Leeland Stadford Junior UnivePALO ALTO, CA | Autonomic Complications of Post-COV | $60,000 | 2020 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Lauren Stiles Jd | President & CEO | 70.00 | $134,885 |
| Amy Kohut Jd | Director | 2.00 | $0 |
| Liza Fisher Mba | Secretary | 2.00 | $0 |
| Jacqueline Rutter Gully | Vice President |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| IVIG in Postural Tachycardia Syndro |
| $50,000 |
| 2021 |
| Regents of Univ of CALIFORNIALaJolla, CA | mitochondrial/immune function pots | $50,000 | 2022 |
| UNIVSERSITY OF TEXASDALLAS, TX | IVIG in Postural Tachycardia Syndro | $50,000 | 2022 |
| John Hopkins UniversityBALTIMORE, MD | SCN9A MUTATION RESEARCH | $50,000 | 2022 |
| UNIVSERSITY OF TEXASDALLAS, TX | IVIG in Postural Tachycardia Syndro | $50,000 | 2023 |
| UNIVERSITY OF UTAHSalt Lake City, UT | Dr. Melissa Cortez Grant 2202-5 -pu | $45,000 | 2023 |
| Regents of Univ of CALIFORNIALaJolla, CA | mitochondrial/immune function pots | $30,200 | 2023 |
| University of ToledoToledo, OH | POTS Research | $30,000 | 2022 |
| Brigham & Womens HospitalBoston, MA | Network Analysis in Dysautonomia | $29,980 | 2020 |
| Ann & Robert H Lurie ChildrenCHICAGO, IL | DOUBLE BLINDED PLACEBO CONTROLLED | $29,362 | 2024 |
| JOHN HOPKIN UNIVERSTYBALTIMORE, MD | Novel Autoantibodies Patients w/POT | $27,220 | 2024 |
| Regents of Univ of CALIFORNIALaJolla, CA | mitochondrial/immune function pots | $25,000 | 2021 |
| John Hopkins UniversityBALTIMORE, MD | SCN9A MUTATION RESEARCH | $25,000 | 2021 |
| UNIVERSITY OF UTAHSalt Lake City, UT | altered nitric oxide metabolism | $25,000 | 2022 |
| Leeland Stadford Junior UnivePALO ALTO, CA | Autonomic Complications of Post-COV | $25,000 | 2022 |
| JOHN HOPKIN UNIVERSTYBALTIMORE, MD | Novel Autoantibodies Patients w/POT | $25,000 | 2023 |
| University of ToledoToledo, OH | POTS Research | $25,000 | 2021 |
| Regents of Univ of CALIFORNIALaJolla, CA | mitochondrial/immune function pots | $25,000 | 2024 |
| University of ToledoToledo, OH | POTS Research | $20,000 | 2023 |
| THE METROLHEALTHCLEVELAND, OH | IMMUNOLOGY APPROACH TO DISSECTING | $15,000 | 2023 |
| JOHN HOPKIN UNIVERSTYBALTIMORE, MD | TCD Device Grant 2022-10 | $15,000 | 2023 |
| MARY HITCHCOCK HOSPITALLEBANON, NH | TCD Device Dr. Nathanial Robbins | $15,000 | 2023 |
| Ann & Robert H Lurie ChildrenCHICAGO, IL | DOUBLE BLINDED PLACEBO CONTROLLED | $10,000 | 2022 |
| 10.00 |
| $0 |
| Irene Collins | Director | 2.00 | $0 |
| Shannon Koplitz | Treasurer & CFO | 10.00 | $0 |
| Salvatore Desena Md | Director | 2.00 | $0 |
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202441729349301709
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202313109349303246
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202223079349302942
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202210079349301531
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201921359349307807
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.