The Rare Disease Charitable Foundation

The Rare Disease Charitable Foundation · GetFunded

Financials

Giving

$171.3M

FY2022 · qualifying distributions

Total assets

FY2022 · end of year

Revenue

$162.8M

FY2022

Expenses

$171.3M

FY2022

Giving by year

Total assets by year

Year	Form	Revenue	Expenses	Giving	Assets	Net assets
FY2022	990-PF	$162,843,174	$171,314,161	$171,314,161	$0

Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.

Grants paid

2 on file

Recipient	Purpose	Amount	Year	Source
Approximately 449 PatientsVarious, MA	Pharmaceutical products to people	$171,314,161	2022

Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.

Officers and directors

Name	Title	Hours / week	Compensation
Karen Shahinian	Chair	0	$0
Janeen Blake	Vice Chair	0	$0
Ryan Mccarthy	Secretary	0	$0
Michael Riffitts	Member

From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.

The Rare Disease Charitable Foundation

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What its returns show

The Rare Disease Charitable Foundation

Can I apply?

What its returns show

Financials

What they fund

Grants paid

Officers and directors