This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $2,012,099 | $1,794,414 | $331,216 | $2,013,453 | $1,543,974 |
| FY2023 | 990 | $1,249,899 | $1,888,477 | $228,536 | $1,779,524 | $1,290,104 |
| FY2022 | 990 | $1,317,262 | $1,654,469 | $332,573 | $2,327,942 | $1,753,407 |
| FY2021 | 990 | $1,770,917 | $1,269,788 | $283,708 | $2,957,547 | $2,324,553 |
| FY2020 | 990 | $1,179,750 | $1,183,055 | $175,258 | $2,242,240 | $2,045,164 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 100% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| University of PennsylvaniaPhiladelphia, PA | Research Grant | $100,000 | 2021 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Paula Eichenbrenner | Executive Dir. | 40.00 | $180,562 |
| Laurie Boyer Chair | Director | 3.00 | $0 |
| Rich Deaugustinis Vice Chair | Director | 1.50 | $0 |
| Martha Arnold Secretary | Director |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| Research Grant |
| $100,000 |
| 2022 |
| University of KansasLawrence, KS | Research Grant | $80,000 | 2021 |
| University of KansasLawrence, KS | Research Grant | $80,000 | 2022 |
| University of PennsylvaniaPhiladelphia, PA | Research Grant | $75,000 | 2020 |
| Johns Hopkins UniversityBaltimore, MD | Research Grant | $75,000 | 2022 |
| Johns Hopkins UniversityBaltimore, MD | Research Grant | $50,000 | 2023 |
| National Institutes of HealthBethesda, MD | Research Grant | $50,000 | 2024 |
| Binghamton UniversityBinghamton, NY | Research Grant | $50,000 | 2020 |
| University of KansasLawrence, KS | Research Grant | $50,000 | 2023 |
| Research Foundation for SUNYAlbany, NY | Research Grant | $50,000 | 2023 |
| Vanderbilt Univ Medical CtrNashville, TN | Research Grant | $25,000 | 2021 |
| Vanderbilt Univ Medical CtrNashville, TN | Research Grant | $25,000 | 2022 |
| Johns Hopkins UniversityBaltimore, MD | Research Grant | $25,000 | 2021 |
| Johns Hopkins UniversityBaltimore, MD | Research Grant | $25,000 | 2024 |
| Johns Hopkins Myositis CenterBaltimore, MD | Patient Advocacy | $13,708 | 2021 |
| Johns Hopkins Myositis CenterBaltimore, MD | Patient Advocacy | $12,363 | 2022 |
| University of PennsylvaniaPhiladelphia, PA | Research Grant | $6,268 | 2024 |
| 1.50 |
| $0 |
| Howard Gerrin Treasurer | Director | 1.50 | $0 |
| Jeff Autrey | Director | 0.50 | $0 |
| Iazsmin Bauer Ventura | Director | 0.50 | $0 |
| Richard Chip Galloway | Director | 0.50 | $0 |
| Holly Jones | Director | 0.50 | $0 |
| Frank Lipiecki | Director | 0.50 | $0 |
| Ricky Marks | Director | 0.50 | $0 |
| David Mochel | Director | 1.50 | $0 |
| Tahseen Mozaffar | Director | 0.50 | $0 |
| Jane Myles | Director | 0.50 | $0 |
| Rodger Oren | Director | 0.50 | $0 |
| Meriel Parker | Director | 0.50 | $0 |
| Mustafa Shameem | Director | 0.50 | $0 |
| Nita Sharma | Director | 0.50 | $0 |
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202423199349315512
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202333139349304193
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202233089349303048
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202133139349302403
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201933199349310313
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201822679349300617
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201723149349302532
Form 990 · FY2015 · period ending Dec 31, 2015
Filing id 201602529349300840
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.