This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
No parsed e-filed return is on record for this organization yet, so year-by-year financials are not available.
Asset, income and revenue figures come from the IRS master file (the IRS Exempt Organizations Business Master File), a coarse annual extract. Year-by-year figures appear once the organization's e-filed returns are in the database.
Recipient focus areas
Where recipients are
Based on the 100% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| ODYLIA THERAPEUTICS INCATLANTA, GA | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $212,502 | 2024 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Susan Trotochaud | PRESIDENT & EXEC DIRECTOR | 25.00 | $0 |
| Scott Dorfman | CHAIR OF BOARD & TREASURER | 10.00 | $0 |
| Larry Dorfman | CHAIR OF DEVELOPMENT | 1.00 | $0 |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| ODYLIA THERAPEUTICS INCATLANTA, GA |
| RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. |
| $193,089 |
| 2023 |
| ODYLIA THERAPEUTICS INCATLANTA, GA | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $184,312 | 2021 |
| ODYLIA THERAPEUTICS INCATLANTA, GA | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $133,283 | 2022 |
| JOHNS HOPKINSBALTIMORE, MD | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $100,653 | 2020 |
| HARP 360BALTIMORE, MD | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $74,449 | 2023 |
| ODYLIA THERAPEUTICS INCATLANTA, GA | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $63,069 | 2020 |
| NATIONAL INSTITUTES OF HEALTH (NIH)BETHESDA, MA | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $55,008 | 2021 |
| JOHNS HOPKINSBALTIMORE, MD | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $50,000 | 2021 |
| UNIVERSITY OF IOWA FOUNDATIONIOWA CITY, IA | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $50,000 | 2020 |
| LSU HEALTH FOUNDATIONNEW ORLEANS, LA | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $25,000 | 2022 |
| LSU HEALTH FOUNDATIONNEW ORLEANS, LA | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $14,541 | 2024 |
| FOUNDATION FIGHTING BLINDNESSCOLUMBIA, MD | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $10,000 | 2020 |
| FOUNDATION FIGHTING BLINDNESSCOLUMBIA, MD | RESEARCH FOR PREVENTION OF USHER SYNDROME BLINDNESS. | $10,000 | 2021 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202423309349300222
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202313199349314396
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202223189349304882
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202113199349304496
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201913179349302766
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201843199349314594
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201733199349302658
Form 990 · FY2015 · period ending Dec 31, 2015
Filing id 201623199349306432
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.