This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2025
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2025 | 990 | $1,397,598 | $1,448,700 | $0 | $2,769,718 | $2,754,711 |
| FY2024 | 990 | $1,376,815 | $1,344,428 | $0 | $2,853,352 | $2,806,055 |
| FY2023 | 990 | $1,177,492 | $1,507,806 | $315,792 | $2,868,442 | $2,772,519 |
| FY2022 | 990 | $1,253,108 | $770,790 | $76,954 | $3,116,145 | $3,092,582 |
| FY2021 | 990 | $1,320,048 | $748,295 | $180,543 | $2,686,792 | $2,610,264 |
| FY2020 | 990 | $1,163,793 | $676,801 | $185,977 | $2,169,529 | $2,038,511 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 68% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| UMASS CHAN MEDICAL CENTERWORCESTER, MA | LYSOMAL STORAGE DISEASE RESEARCH | $142,875 | 2023 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Oralea Marquardt | DIRECTOR | 2.50 | $0 |
| Sara Scaparotti | PRESIDENT | 2.50 | $0 |
| Michael Richards | TREASURER | 2.50 | $0 |
| Lisajane Romer | SECRETARY |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| LYSOMAL STORAGE DISEASE RESEARCH |
| $112,000 |
| 2023 |
| MASS GENERAL HOSPITAL - IHPCHARLESTOWN, MA | LYSOSOMAL STORAGE DISEASE RESEARCH | $55,917 | 2022 |
| MGH INST OF HEALTH PROFESSIONSCHARLESTOWN, MA | LYSOMAL STORAGE DISEASE RESEARCH | $55,917 | 2023 |
| WEIZMANN INSTITUTE OF SCIENCE | ROLE OF MICROGLIA IN SANDHOFF DISEASE PATHOLOGY | $48,000 | 2021 |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOLWORCESTER, MA | LYSOSOMAL STORAGE DISEASE RESEARCH | $48,000 | 2020 |
| ST JUDE CHILDRENS RESEARCH HOSPITALMEMPHIS, TN | ROLE OF THE PLASMA MEMBRANE-ER CONTACT SITES IN GM1-MEDIATED NEURONAL CELL DEATH | $32,000 | 2021 |
| WASHINGTON UNIVERSITYST LOUIS, MO | OLIGOSACCHARIDE BIOMARKERS FOR DISEASE PROGRESSION | $32,000 | 2021 |
| ST JUDE CHILDRENS RESEARCH HOSPITALMEMPHIS, TN | ROLE OF THE PLASMA MEMBRANE-ER CONTACT SITES IN GM1-MEDIATED NEURONAL CELL DEATH | $24,000 | 2020 |
| UNIVERSITY OF MARYLAND SCHOOL OF MEDICINEBALTIMORE, MD | LYSOSOMAL STORAGE DISEASE RESEARCH | $21,000 | 2020 |
| NATIONAL HUMAN GENOME RESEARCH INSTITUTEBETHESDA, MD | LATE ONSET TAY-SACHS AND SANDHOFF RESEARCH | $17,500 | 2021 |
| NATIONAL HUMAN GENOME RESEARCH INSTITUTEBETHESDA, MD | LATE ONSET TAY-SACHS AND SANDHOFF RESEARCH | $17,500 | 2020 |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOLWORCESTER, MA | LYSOSOMAL STORAGE DISEASE RESEARCH | $16,037 | 2022 |
| DANA-FARBER CANCER INSTITUTEBOSTON, MA | LYSOSOMAL STORAGE DISEASE RESEARCH | $16,000 | 2020 |
| WASHINGTON UNIVERSITYST LOUIS, MO | OLIGOSACCHARIDE BIOMARKERS FOR DISEASE PROGRESSION | $16,000 | 2020 |
| NEW YORK UNIVERSITY SCHOOL OF MEDICINEBOSTON, MA | LYSOSOMAL STORAGE DISEASE RESEARCH | Not available | 2020 |
| UNIVERSITY OF PAPHILADELPHIA, PA | LYSOSOMAL STORAGE DISEASE RESEARCH | Not available | 2021 |
| EMORY UNIVERSITYATLANTA, GA | LYSOSOMAL STORAGE DISEASE RESEARCH | Not available | 2021 |
| GREENWOOD GENETIC CENTERGREENWOOD, SC | LYSOSOMAL STORAGE DISEASE RESEARCH | Not available | 2021 |
| GREENWOOD GENETIC CENTERGREENWOOD, SC | LYSOSOMAL STORAGE DISEASE RESEARCH | Not available | 2020 |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOLWORCESTER, MA | LYSOSOMAL STORAGE DISEASE RESEARCH | Not available | 2021 |
| UNIVERSITY OF PAPHILADELPHIA, PA | LYSOSOMAL STORAGE DISEASE RESEARCH | Not available | 2020 |
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | LYSOSOMAL STORAGE DISEASE RESEARCH | Not available | 2021 |
| NEW YORK UNIVERSITY SCHOOL OF MEDICINEBOSTON, MA | LYSOSOMAL STORAGE DISEASE RESEARCH | Not available | 2021 |
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | LYSOSOMAL STORAGE DISEASE RESEARCH | Not available | 2020 |
| 2.50 |
| $0 |
| Lauren Celano | DIRECTOR | 2.50 | $0 |
| Matthew Goldstein | DIRECTOR | 2.50 | $0 |
| Gerry Cox | DIRECTOR | 2.50 | $0 |
| Bonnie Davis | DIRECTOR | 2.50 | $0 |
| Amber Franzen | DIRECTOR | 2.50 | $0 |
| Staci Kallish | DIRECTOR | 2.50 | $0 |
| Jonathan Katz | DIRECTOR | 2.50 | $0 |
| Martha Kleinman | DIRECTOR | 2.50 | $0 |
| Dawn Laney | DIRECTOR | 2.50 | $0 |
| Jonathan Lawrence | VICE PRESIDENT | 2.50 | $0 |
| Jamie Ring | DIRECTOR | 2.50 | $0 |
| Susan Roden | DIRECTOR | 2.50 | $0 |
| Abby Rogers | DIRECTOR | 2.50 | $0 |
| Deborah Sanders | DIRECTOR | 2.50 | $0 |
| Carla Steckman | DIRECTOR | 2.50 | $0 |
| Kathleen Flynn | CEO | 40.00 | $169,733 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2024 · period ending Jun 30, 2024IRS bulk XML
Filing id 202531059349300423
Form 990 · FY2023 · period ending Jun 30, 2023IRS bulk XML
Filing id 202401359349305915
Form 990 · FY2022 · period ending Jun 30, 2022
Filing id 202233069349302258
Form 990 · FY2021 · period ending Jun 30, 2021
Filing id 202133079349302148
Form 990 · FY2020 · period ending Jun 30, 2020
Filing id 202140639349301704
Form 990 · FY2019 · period ending Jun 30, 2019
Filing id 202020569349301407
Form 990 · FY2018 · period ending Jun 30, 2018
Filing id 201900859349300015
Form 990 · FY2017 · period ending Jun 30, 2017
Filing id 201800759349301150
Form 990 · FY2016 · period ending Jun 30, 2016
Filing id 201730459349302553
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.