This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $1,263,681 | $1,885,833 | $245,738 | $739,008 | $269,404 |
| FY2023 | 990 | $3,146,217 | $3,449,342 | $373,923 | $2,028,346 | $885,367 |
| FY2022 | 990 | $1,869,480 | $3,680,696 | $481,375 | $2,744,200 | $1,743,120 |
| FY2021 | 990 | $3,554,448 | $3,190,132 | $332,203 | $4,583,151 | $3,574,071 |
| FY2020 | 990 | $3,558,837 | $2,810,072 | $501,186 | $3,990,213 | $3,205,985 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 93% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| Ann and Robert H Lurie Children's Hospital of ChicagoChicago, IL | 2023 PERF Grant - $150,000; 2023 Transition of Care Quality Improvement Grant - $25,000 | $175,000 | 2022 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Amy Brin Jan - Feb | Executive Director | 40 | $312,275 |
| Lindsey Taveren Jul - Dec | Interim Executive Director | 40 | $113,844 |
| Allyson Eyermann | Deputy Director | 40 | $121,718 |
| Breanna Mccormley Mar - Jul | Interim Executive Director |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| University of RochesterRochester, NY |
| 2023 PERF Grant - $150,000 |
| $150,000 |
| 2022 |
| Rector and Visitors of the University of VirginiaCharlottesville, VA | 2023 PERF Grant - $150,000 | $150,000 | 2023 |
| University of UtahSalt Lake City, UT | 2023 PERF Grant - $150,000 | $150,000 | 2023 |
| CHILDREN'S RESEARCH INSTITUTE - AWARDEE YOUSSEF KOUSA DO PHDSILVER SPRING, MD | 2020 PERF ELTERMAN RESEARCH GRANT | $100,000 | 2020 |
| BOT - LELAND STANFORD JUNIOR UNIVERSITY-AWARDEE JULIET KNOWLES MD PHDREDWOOD CITY, CA | 2020 PERF SHIELDS RESEARCH GRANT | $100,000 | 2020 |
| Regents of the University of CaliforniaIrvine, CA | 2021 PERF Elterman Research Grant | $100,000 | 2021 |
| Children's Research InstituteWashington, DC | 2022 PERF Shields Research Grant | $100,000 | 2021 |
| National Tuberous Sclerosis AssociationSilver Spring, MD | 2022 Infantile Spasms Awareness Network Governance Grant - $36,375; 2022 Infantile Spasms Awareness Week Grant - $5,000 | $41,375 | 2022 |
| Tuberous Sclerosis AllianceSilver Spring, MD | Infantile Spasms Awareness Week | $32,000 | 2021 |
| Child Neurology SocietySt Paul, MN | 2022 Unrestricted Symposium Grant - $30,000; Dodge Research Grant Contribution - $1,000 | $31,000 | 2022 |
| Child Neurology SocietySt Paul, MN | 2021 Unrestricted Symposium Grant | $30,000 | 2021 |
| University of Louisville Research FoundationLouiseville, KY | 2023 Quality Improvement Grant | $25,000 | 2023 |
| University of Louisville Research Foundation IncLouisville, KY | 2023 Quality Improvement Grants Continued - $25000 | $25,000 | 2024 |
| Children's Hospital CorporationBoston, MA | 2022 Transition of Care Quality Improvement Grant | $25,000 | 2022 |
| CHILD NEUROLOGY SOCIETYSAINT PAUL, MN | 2020 UNRESTRICTED SYMPOSIUM GRANT | $20,000 | 2020 |
| LGS FoundationBohemia, NY | Infantile Spasms Awareness Week | $19,000 | 2021 |
| Washington UniversitySt Louis, MO | 2024 Swaiman Scholarship - $6000; 2024 Quality Improvement Transition of Care Grant - $13000 | $19,000 | 2024 |
| Hugo W Moser Research Institute at Kennedy Krieger IncBaltimore, MD | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 | 2024 |
| Children's Research InstituteWashington, DC | 2024 Quality Improvement Care Coordination Grant - $13000 | $13,000 | 2024 |
| Angelman Syndrome Foundation IncAurora, IL | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 | 2024 |
| The Trustees of Columbia UniversityNew York, NY | 2024 Quality Improvement Care Coordination Grant - $13000 | $13,000 | 2024 |
| Baylor College of MedicineHouston, TX | 2024 Quality Improvement Care Coordination Grant - $13000 | $13,000 | 2024 |
| The General Hospital Corporation dba Massachusetts General HospitalBoston, MA | 2024 Quality Improvement Care Coordination Grant - $13000 | $13,000 | 2024 |
| Childrens Mercy HospitalKansas City, MO | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 | 2024 |
| 40 |
| $76,190 |
| Dr Donald Pearl | Director | 2 | $0 |
| Dr Alison Christy | Director | 1 | $0 |
| Dr Geetanjali Rathore | Director | 2 | $0 |
| Jason Schmidt | Director | 2 | $0 |
| Jason Vinson | Director | 0.5 | $0 |
| Dr Madeline Chadehumbe | Director | 2 | $0 |
| Dr Sonika Agarwal | Director | 2 | $0 |
| Tristin West | Director | 2 | $0 |
| Dr Peter Kang | Ex Officio Child Neurology Society President | 0.5 | $0 |
| Dr Yasmin Khakoo | Ex Officio Child Neurology Society President Elect | 4 | $0 |
| Monique Terrell | Ex Officio Child Neurology Society Executive Director Non-voting Member | 0.25 | $0 |
| Dr Mary Zupanc | Ex Officio Honorary Director Non-voting member | 4 | $0 |
| Dr W Donald Shields | Ex Officio Honorary Director Non-voting member | 2 | $0 |
| Stephen Peters | President | 5 | $0 |
| Dr M Scott Perry | President Elect | 4 | $0 |
| Dr Ann Tilton | Past President | 2 | $0 |
| Dr John Millichap | Secretary | 2 | $0 |
| Dr Rebecca Schultz Feb - Dec | Treasurer | 2 | $0 |
| Dr Amaris Sanchez Larragoity | Director | 2 | $0 |
| Dr Shaun Hussain | Secretary | 2 | $0 |
| Timothy Engel Jan | Treasurer | 0 | $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202413209349302816
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202342139349300204
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202221589349301457
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202132729349300608
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201911719349300041
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201831779349300428
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201701719349300820
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.