This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $2,781,149 | $1,572,959 | $643,960 | $13,871,255 | $13,736,183 |
| FY2023 | 990 | $2,106,392 | $1,292,685 | $570,714 | $11,198,610 | $11,174,074 |
| FY2022 | 990 | $2,707,445 | $2,287,097 | $1,633,999 | $9,625,770 | $9,604,578 |
| FY2021 | 990 | $2,229,880 | $2,586,338 | $1,963,579 | $10,337,575 | $10,337,575 |
| FY2020amended | 990 | $2,083,251 | $3,140,290 | $2,546,156 | $10,163,332 | $10,099,881 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 56% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| ReMotor TherapeuticsDoral, FL | Transplant MPSIII human neural syst | $1,400,500 | 2020 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Transplant MPSIII human neural syst |
| $466,500 |
| 2021 |
| ReMotor TherapeuticsDoral, FL | Transplant MPSIII human neural syst | $466,500 | 2022 |
| ReMotor TherapeuticsDoral, FL | Transplant MPSIII human neural syst | $466,500 | 2021 |
| University of North CarolinaChapel Hill, NC | Systemic scAAV9 | $386,635 | 2022 |
| Phoenix NestBrooklyn, NY | Gene Therapy for Sanfilippo Type C | $379,539 | 2020 |
| Lundquist InstituteTorrance, CA | Open-label pilot study | $322,463 | 2020 |
| University of North CarolinaChapel Hill, NC | Systemic scAAV9 | $240,000 | 2023 |
| Lundquist InstituteTorrance, CA | Open-label pilot study | $222,463 | 2021 |
| TEGA TherapeuticsSan Diego, CA | MPSIII Enzyme Replacement Project | $200,000 | 2020 |
| Regents of UC - San DiegoLa Jolla, CA | Novel Immune Deficient MPSIIIA | $128,958 | 2022 |
| Phoenix NestBrooklyn, NY | Gene Therapy JLK-247 for regulatory | $125,000 | 2021 |
| Regents of UC - San DiegoLa Jolla, CA | Treating Mucopolysaccharidosis | $120,000 | 2024 |
| UNC - Chapel HillChapel Hill, NC | Pre-clinical work for scAAV9 gene d | $108,177 | 2020 |
| Albert Einstein College of MeBronx, NY | Screen plus newborn screening | $100,000 | 2021 |
| Clemson UniversityClemson, SC | Identifying Disease Modifiers in Dr | $85,000 | 2022 |
| Lundquist InstituteTorrance, CA | Open-label pilot study | $71,059 | 2022 |
| Regents of UC - San DiegoLa Jolla, CA | Blood-based biomarkers for Sanfilip | $64,479 | 2021 |
| Lundquist InstituteTorrance, CA | Open-label pilot study | $60,000 | 2023 |
| Phoenix NestBrooklyn, NY | Gene Therapy JLK-247 for regulatory | $51,750 | 2022 |
| Phoenix NestBrooklyn, NY | Neuroprotective peptides for treatm | $51,750 | 2023 |
| Phoenix NestBrooklyn, NY | Neuroprotective peptides for treatm | $51,750 | 2021 |
| Albert Einstein College of MeBronx, NY | Screen plus newborn screening | $50,000 | 2022 |
| University of GeorgiaAthens, GA | Peropheral Neural Stem Cell Models | $49,976 | 2024 |
| Regents of UC - San DiegoLa Jolla, CA | Evaluation of substrate recovery th | $47,795 | 2020 |
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202413169349303526
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202343189349301209
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202203189349301240
Form 990 · FY2020 · period ending Dec 31, 2020 · amended
Filing id 202220489349301512
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201923199349314287
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201803199349310410
Form 990 · FY2015 · period ending Dec 31, 2015
Filing id 201613079349301431
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.