This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2025
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2025 | 990 | $8,678,380 | $8,239,349 | $5,375,683 | $20,833,981 | $7,159,108 |
| FY2024 | 990 | $9,307,309 | $11,731,465 | $9,350,537 | $20,356,580 | $4,720,078 |
| FY2023 | 990 | $8,523,815 | $12,338,304 | $9,938,988 | $18,457,084 | $7,135,812 |
| FY2022 | 990 | $7,097,993 | $4,042,165 | $2,073,337 | $14,883,080 | $10,950,301 |
| FY2021 | 990 | $8,124,811 | $4,739,121 | $3,172,189 | $13,582,017 | $7,894,472 |
| FY2020 | 990 | $14,024,428 | $3,066,720 | $1,518,003 | $11,977,275 | $4,508,783 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 21% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| MASSACHUSETTS INSTITUTE OF TECHNOLOGYCAMBRIDGE, MA | RNA EDITING | $3,734,738 | 2023 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Adrian Bird | TRUSTEE | 2.00 | $0 |
| Alba Tull | TRUSTEE | 2.00 | $0 |
| Amy Gilliand | TRUSTEE | 2.00 | $0 |
| Brad Zelinger | TRUSTEE |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| RETT RESEARCH |
| $2,343,091 |
| 2023 |
| EMORY UNIVERSITYATLANTA, GA | RNA EDITING | $1,254,085 | 2023 |
| MITTRUMBULL, CT | RETT RESEARCH | $1,244,914 | 2024 |
| PROQRTRUMBULL, CT | RETT RESEARCH | $1,120,000 | 2023 |
| PRE-CLINICAL STUDIESTRUMBULL, CT | RETT RESEARCH | $1,100,000 | 2025 |
| PROFLUENTTRUMBULL, CT | RETT RESEARCH | $1,000,000 | 2025 |
| UNIVERSITY OF MASSACHUSETTSTRUMBULL, CT | RETT RESEARCH | $781,032 | 2024 |
| GENE THERAPY CONSORTIUMTRUMBULL, CT | GENE THERAPY CONSORTIUM | $765,607 | 2020 |
| VIRALGENTRUMBULL, CT | RETT RESEARCH | $750,000 | 2025 |
| UNIVERSITY OF MASSASHUSSETS MEDICAL SCHOOLWORCESTER, MA | RNA/DNA EDITING;READTHROUGH THERAPY; MECP2 DUPLICATION SYNDROME | $641,740 | 2021 |
| BEAM THERAPEUTICSCAMBRIDGE, MA | DNA EDITING | $639,300 | 2021 |
| MASSACHUSETTS INSTITUTE OF TECHNOLOGYCAMBRIDGE, MA | RNA EDITING | $612,334 | 2021 |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOLWORCESTER, MA | RETT RESEARCH | $607,197 | 2022 |
| UNIVERSITY OF MASSASHUSSETS MEDICAL SCHOOLWORCESTER, MA | RNA/DNA EDITING;READTHROUGH THERAPY; MECP2 DUPLICATION SYNDROME | $533,759 | 2020 |
| CALIFORNIA INSTITUTE OF TECHNOLOGIESPASADENA, CA | RETT RESEARCH | $500,000 | 2023 |
| UNIVERSITY OF CALIFORNIA DAVISTRUMBULL, CT | RNA EDITING | $474,894 | 2025 |
| MECP2 CONSORTIUMTRUMBULL, CT | MECP2 CONSORTIUM | $450,000 | 2020 |
| BEAM THERAPEUTICSCAMBRIDGE, MA | DNA EDITING | $426,200 | 2020 |
| EMORY UNIVERSITYTRUMBULL, CT | RETT RESEARCH | $424,881 | 2024 |
| JACKSON LABSTRUMBULL, CT | RETT RESEARCH | $419,317 | 2025 |
| CLINICAL TRIAL CONSORTIUMTRUMBULL, CT | CLINICAL TRIAL CONSORTIUM | $418,578 | 2020 |
| UNIVERSITY OF CALIFORNIA DAVISDAVIS, CA | RNA EDITING | $390,506 | 2023 |
| RETT SYNDROME GLOBAL REGISTRY CO RSRTTRUMBULL, CT | RETT RESEARCH | $383,228 | 2022 |
| UNIVERSITY OF PENNSYLVANIATRUMBULL, CT | RETT RESEARCH | $380,686 | 2021 |
| 2.00 |
| $0 |
| Brian Whitmer | TRUSTEE | 2.00 | $0 |
| Heidi Epstein | VICE CHAIRMAN | 2.00 | $0 |
| Ingrid Harding | CO-FOUNDER AND TRUSTEE | 2.00 | $0 |
| Lawrence Mattis | SECRETARY | 2.00 | $0 |
| Marci Valner | TREASURER | 2.00 | $0 |
| Monica Coenraads | CHIEF EXECUTIVE OFFICER | 50.00 | $220,000 |
| Rachael Stevenson | TRUSTEE | 2.00 | $0 |
| Rachel Rothschild | TRUSTEE | 2.00 | $0 |
| Stephanie Bohn | TRUSTEE | 2.00 | $0 |
| Anthony P Schoener | CHAIRMAN | 2.00 | $0 |
| Jana Se Von Hehn | CHIEF SCIENTIFIC OFFICER | 50.00 | $220,000 |
| Robert Deans | CHIEF TECHNOLOGY OFFICER | 50.00 | $215,000 |
| Timothy J Freeman | CHIEF DEVELOPMENT OFFICER | 50.00 | $220,000 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2024 · period ending Dec 31, 2024IRS bulk XML
Filing id 202541969349300024
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202431849349300208
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202341319349301974
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202211369349300611
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202131379349300313
Form 990 · FY2019 · period ending Dec 31, 2019
Filing id 202002529349300655
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201911349349301611
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201821339349300402
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201701359349304095
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.