This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $541,973 | $584,239 | $174,093 | $407,310 | $405,659 |
| FY2023 | 990 | $503,647 | $497,687 | $152,845 | $459,776 | $447,964 |
| FY2022 | 990 | $610,734 | $868,351 | $527,168 | $447,207 | $442,004 |
| FY2021 | 990 | $381,268 | $466,822 | $245,038 | $717,894 | $699,621 |
| FY2020 | 990 | $675,901 | $113,779 | $9,955 | $798,282 | $785,175 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 69% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| Stanford UniversityStanford, CA | SLC13A5 Natural History Study | $139,654 | 2023 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Amber Black | Secretary | 40.00 | $67,838 |
| Paula Gani | Director | 3.00 | $0 |
| Courtney Alberti | Director | 2.00 | $0 |
| Adam Alberti | Director |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| SLC13A5 Natural History Study |
| $136,224 |
| 2022 |
| New York University School of MedicNew York, NY | Research | $118,975 | 2021 |
| UC RegentsOakland, CA | New research tool for the SLC13A5 commun | $100,000 | 2022 |
| Stanford UniversityStanford, CA | SLC13A5 Natural History Study | $80,200 | 2024 |
| Icahn School of Medicine at Mount SNew York, NY | Modulation of NaCT Function for the Trea | $50,000 | 2022 |
| CURE EpilepsyChicago, IL | Research | $29,979 | 2024 |
| Texas Tech University Health SciencLubbock, TX | Development of correctors to rescue muta | $25,000 | 2022 |
| Laxai Avanti Life Sciences IncSan Jose, CA | Compound synthesis | $14,800 | 2022 |
| Stanford UniversityStanford, CA | Research | $14,031 | 2021 |
| The Jackson LaboratoryBar Harbor, ME | Research | $12,677 | 2023 |
| Uplifting AthletesDoylestown, PA | Matching Grant for SLC13A5 Research | $10,000 | 2022 |
| CIITIZEN CORPORATIONMODESTO, CA | SLC13A5 DIGITAL NATURAL HISTORY STUDY | $7,500 | 2020 |
| 2.00 |
| $0 |
| Lee Scheuer | Director | 3.00 | $0 |
| Robert Wassman | Director | 3.00 | $0 |
| Don Neault | Director | 3.00 | $0 |
| Janet Wojcicki | Director | 3.00 | $0 |
| Megan Gilbert | Director | 3.00 | $0 |
| Rich Windisch | Director | 3.00 | $0 |
| Kimberly Nye | Chair & Executive Director | 40.00 | $0 |
| Kevin Mcdonnell | Treasurer | 3.00 | $0 |
| Michael Black | Vice Chair | 5.00 | $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202432339349300443
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202332709349300128
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202243159349303344
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202103169349311245
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201922849349301497
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201813189349310981
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201733189349308223
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.