This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $716,694 | $679,506 | $266,446 | $2,404,524 | $2,130,432 |
| FY2023 | 990 | $676,629 | $1,264,542 | $668,980 | $2,299,269 | $2,081,145 |
| FY2022 | 990 | $944,773 | $957,076 | $0 | $2,802,564 | $2,682,564 |
| FY2021 | 990 | $984,255 | $482,756 | $0 | $2,783,114 | $2,663,114 |
| FY2020 | 990 | $800,954 | $714,151 | $0 | $2,212,220 | $2,161,615 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 100% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| NATIONWIDE CHILDREN'S HOSPITALCOLUMBUS, OH | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $639,381 | 2022 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Amber Freed | FOUNDER/CEO | 60.00 | $99,999 |
| Kimberly Fry | VICE PRESIDENT | 25.00 | $0 |
| Chantal Pittman | PATIENT ADVOCATE | 1.00 | $0 |
| Kelsey Piro | SECRETARY/TREASURER |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| NATIONWIDE CHILDREN'S HOSPITALCOLUMBUS, OH |
| THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. |
| $393,411 |
| 2023 |
| UNIVERSITY OF COLORADOAURORA, CO | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $106,740 | 2024 |
| CHILDREN'S HOSPITAL OF COLORADOAURORA, CO | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $72,040 | 2023 |
| WEILL CORNELL MEDICAL CENTERNEW YORK, NY | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $70,000 | 2022 |
| UNIVERSITY OF MONTANAMISSOULA, MT | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $54,500 | 2023 |
| NATIONWIDE CHILDREN'S HOSPITALCOLUMBUS, OH | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $50,255 | 2024 |
| VANDERBILT UNIVERSITYNASHVILLE, TN | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $35,000 | 2023 |
| AMERICAN SOCIETY OF GENE & CELL THERAPYWAUKESHA, WI | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $33,334 | 2024 |
| UNIVERSITY OF ALABAMATUSCALOOSA, AL | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $33,334 | 2023 |
| WEILL CORNELL MEDICAL CENTERNEW YORK, NY | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $33,333 | 2023 |
| CHILDREN'S HOSPITAL OF COLORADOAURORA, CO | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $30,000 | 2022 |
| UNIVERSITY OF TEXAS SOUTHWESTERNDALLAS, TX | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $27,318 | 2022 |
| UNIVERSITY OF MONTANAMISSOULA, MT | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $26,524 | 2022 |
| UNIVERSITY OF TEXAS SOUTHWESTERNDALLAS, TX | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $26,384 | 2024 |
| COMBINEDBRIAN INCBRENTWOOD, TN | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $25,417 | 2024 |
| GLADSTONE INSTITUTESSAN FRANCISCO, CA | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $25,000 | 2023 |
| GLADSTONE INSTITUTESSAN FRANCISCO, CA | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $25,000 | 2022 |
| UNIVERSITY OF TEXAS SOUTHWESTERNDALLAS, TX | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $22,362 | 2023 |
| UNIVERSITY OF ALABAMATUSCALOOSA, AL | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $11,935 | 2024 |
| THE EPILEPSY FOUNDATIONBOWIE, MD | THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $10,215 | 2024 |
| 5.00 |
| $0 |
| Michaella Gallina | ADVISOR | 1.00 | $0 |
| Dr Angela Mazur | ADVISOR | 1.00 | $0 |
| Gretchen Mcalister | FUNDRAISING CO-CHAIR | 1.00 | $0 |
| Angela Melka | ADVISOR | 1.00 | $0 |
Nearest by size, location and giving pattern in the database. Geography weighs heavily. Treat it as a starting list, not a ranking of fit.
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202423189349307752
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202311569349300621
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202200529349300415
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202141389349301719
Form 990 · FY2019 · period ending Dec 31, 2019
Filing id 202031409349301133
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.