This organization files Form 990, which has no section for application policy. Its filings cannot say either way.
The latest filing we hold carries no statement about applications. That is not the same as closed: public-charity Form 990s have no field for it, and many foundations leave the section blank.
Grants paid by year
Total assets by year
Where the money went · FY2024
Form 990 splits expenses into program services, management and fundraising. The split is self-reported, and a grantmaker, a research institute and a direct-service nonprofit book the same work differently. A line the return does not carry reads "not available"; it is never counted as zero.
| Year | Form | Revenue | Expenses | Grants paid | Assets | Net assets |
|---|---|---|---|---|---|---|
| FY2024 | 990 | $15,982,317 | $17,011,486 | $5,125,912 | $5,156,977 | $3,970,105 |
| FY2023 | 990 | $13,573,899 | $16,433,621 | $4,715,723 | $5,433,549 | $4,625,545 |
| FY2022 | 990 | $13,595,220 | $14,534,841 | $5,395,276 | $8,367,265 | $5,262,638 |
| FY2021 | 990 | $13,364,540 | $13,560,977 | $5,016,733 | $10,168,996 | $6,834,374 |
| FY2020 | 990 | $12,837,875 | $13,160,458 | $5,365,955 | $10,322,975 | $6,185,477 |
Figures are as reported on the e-filed return, with no restatement. Fiscal years are the funder's own tax year, labelled by the calendar year the period ends in. A blank line means the return does not carry that figure; a real zero shows as $0. When an amended return replaces an original, every figure here uses the amended return. The original is not shown. Giving is what the funder actually paid out toward its charitable purpose in the year (qualifying distributions on Form 990-PF, charitable disbursements otherwise). Assets are what it holds; giving is what moves.
Recipient focus areas
Where recipients are
Based on the 85% of grant rows we could match to an organization record. The rest stay as reported. The IRS assigns the NTEE category when it grants exemption. It often reflects the original filing, not today's giving.
| Recipient | Purpose | Amount | Year | Source |
|---|---|---|---|---|
| HEMOPHILIA FOUNDATION OF MICHIGANYPSILANTI, MI | DATA MANAGEMENT CAPACITY RESEARCH | $604,458 | 2022 | |
Recipients are shown as the funder wrote them on the return. A recipient with a link was matched to an organization record; the rest stay as reported and are never guessed.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Christopher E Walsh Md Phd | CHAIR | 1.00 | $0 |
| Tamara Vogel Mba | TREASURER | 1.00 | $0 |
| Duc Bobby Tran Md Msc | DIRECTOR | 1.00 | $0 |
| Jennifer G Davila Md | DIRECTOR |
From the officer list on the latest e-filed return. Compensation is as reported there; a blank means the return carries no figure.
| DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT |
| $566,663 |
| 2024 |
| HEMOPHILIA FOUNDATION OF MICHIGANYPSILANTI, MI | DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT | $563,123 | 2023 |
| HEMOPHILIA FOUNDATION OF MICHIGANYPSILANTI, MI | DATA MANAGEMENT CAPACITY RESEARCH AND SURVEILANCE | $556,317 | 2020 |
| THE CENTER FOR COMPREHENSIVE CARE & DIAGNOSIS OF INHERITED BLOOD DISORDERSORANGE, CA | DATA MANAGEMENT CAPACITY RESEARCH AND SURVEILANCE | $527,417 | 2020 |
| THE UNIVERSITY OF TEXAS HOUSTONDALLAS, TX | DATA MANAGEMENT CAPACITY RESEARCH AND SURVEILANCE | $492,128 | 2020 |
| HEMOPHILIA FOUNDATION OF MICHIGANYPSILANTI, MI | DATA MANAGEMENT CAPACITY RESEARCH | $475,306 | 2021 |
| UNIVERSITY OF TEXAS HOUSTONHOUSTON, TX | DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT | $474,956 | 2023 |
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | DATA MANAGEMENT CAPACITY RESEARCH AND SURVEILANCE | $458,956 | 2020 |
| UNIVERSITY OF TEXAS HOUSTON (671)DALLAS, TX | DATA MANAGEMENT CAPACITY RESEARCH | $434,032 | 2022 |
| LEHIGH VALLEY HOSPITAL INCALLENTOWN, PA | DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT | $428,581 | 2024 |
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | DATA MANAGEMENT CAPACITY RESEARCH | $423,433 | 2021 |
| CHILDREN'S HOSPITAL OF PHILADELPHIAPHILADELPHIA, PA | DATA MANAGEMENT CAPACITY RESEARCH | $423,186 | 2022 |
| GREAT LAKES HEMOPHILIA FOUNDATIONMILWAUKEE, WI | DATA MANAGEMENT CAPACITY RESEARCH | $417,962 | 2022 |
| LEHIGH VALLEY HOSPITAL INCALLENTOWN, PA | DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT | $411,118 | 2023 |
| CENTER FOR INHERITED BLOOD DISORDERSORANGE, CA | DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT | $393,944 | 2024 |
| THE CENTER FOR COMPREHENSIVE CARE & DIAGNOSIS OF INHERITED BLOOD DISORDERSORANGE, CA | DATA MANAGEMENT CAPACITY RESEARCH | $392,716 | 2021 |
| THE UNIVERSITY OF TEXAS HOUSTONDALLAS, TX | DATA MANAGEMENT CAPACITY RESEARCHDATA MANAGEMENT CAPACITY RESEARCH | $388,286 | 2021 |
| GREAT LAKES HEMOPHILIA FOUNDATIONMILWAUKEE, WI | DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT | $387,200 | 2024 |
| GREAT LAKES HEMOPHILIA FOUNDATIONMILWAUKEE, WI | DATA MANAGEMENT CAPACITY RESEARCH AND SURVEILANCE | $383,975 | 2020 |
| CENTER FOR INHERITED BLOOD DISORDERSORANGE, CA | DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT | $383,451 | 2023 |
| ICAHN SCHOOL OF MEDICINE AT MOUNT SINAINEW YORK, NY | DATA MANAGEMENT CAPACITY RESEARCH AND SURVEILANCE | $372,010 | 2020 |
| CENTER FOR INHERITED BLOOD DISORDERSORANGE, CA | DATA MANAGEMENT CAPACITY RESEARCH | $368,334 | 2022 |
| HEMOPHILIA OF GEORGIA INCATLANTA, GA | DATA MANAGEMENT CAPACITY RESEARCH AND SURVEILANCE | $363,359 | 2020 |
| OREGON HEALTH & SCIENCE UNIVERSITYPORTLAND, OR | DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT | $357,234 | 2023 |
| 1.00 |
| $0 |
| Jim Munn Rn Ms | DIRECTOR | 1.00 | $0 |
| Robert Sidonio Md | DIRECTOR | 1.00 | $36,000 |
| Crystal Watson | PRESIDENT AND CEO | 40.00 | $331,645 |
| Roosevelt Council | CHIEF FINANCIAL OFFICER | 40.00 | $18,073 |
| Michael Niekamp | CFO ENDING 12/24 | 40.00 | $278,341 |
| Tammuella Singleton | CHIEF SCIENCE OFFICER | 40.00 | $405,584 |
| Moses Miles Iii | CHIEF OPERATING OFFICER | 40.00 | $299,312 |
| Srikanth Subramanya | SR. DIRECTOR, ENGINEERING | 40.00 | $189,553 |
| Nabil Daoud | DIRECTOR, DATA SCIENCE | 40.00 | $177,216 |
| Troy Verbrugge | LEAD SOFTWARE ENGINEER | 40.00 | $181,324 |
| Justine Kaplan | SR. DIRECTOR, OFFICE OF PHI | 40.00 | $167,090 |
| Diana Vainshtein | DIRECTOR, PRODUCT MANAGEMENT | 40.00 | $166,397 |
Form 990 · FY2023 · period ending Dec 31, 2023IRS bulk XML
Filing id 202423199349311162
Form 990 · FY2022 · period ending Dec 31, 2022
Filing id 202343189349303474
Form 990 · FY2021 · period ending Dec 31, 2021
Filing id 202212809349300926
Form 990 · FY2020 · period ending Dec 31, 2020
Filing id 202142509349301339
Form 990 · FY2018 · period ending Dec 31, 2018
Filing id 201922279349301827
Form 990 · FY2017 · period ending Dec 31, 2017
Filing id 201802369349300805
Form 990 · FY2016 · period ending Dec 31, 2016
Filing id 201712729349301501
Form 990 · FY2015 · period ending Dec 31, 2015
Filing id 201602539349301260
IRS filings are the source for every fact on this page. Nothing a model writes is ever a source; it can only point at a row here.